International Pompe Association

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The IPA, with the help of its Board and Advisors, has developed a new Pompe Connections devoted to Cell and Gene Therapy, available at the following link:

We ask our Members, and the broader Pompe Community of patients, family members, and the medical community, to contact us at if there are additional topics that you would like to see covered.

In addition, please contact us if you would be willing to help with translations of current and future Pompe Connections brochures.