International Pompe Association

You are here: Home More... Links Funds For Children In Need
This is an organization set up to assist those individuals with a very rare and fatal disease, known as Acid Maltase Deficiency (AMD) Helping hands will provide financial assistantce for various expenses needed for those with AMD, while waiting for treatment to be available. E-mail:

Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.