International Pompe Association

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Climb is committed to fighting metabolic diseases through research, awareness and support. We are the UK’s only dedicated organisation to provide advice, information and support on all metabolic diseases to children, young adults, families, carers and professionals. E-mail lesley@climb.org.uk

Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.