International Pompe Association

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Every Child is an international development charity that works with the most vulnerable and marginalised children in 18 of the world’s poorest countries. We work with vulnerable children, families and communities to eradicate poverty and social injustice. We focus our resources on the most vulnerable and marginalised children and communities in our project countries regardles of religion, ethnicity, gender, disability or culture.

Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.