International Pompe Association

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Our mission is to help children with chronic, life-threatening illnesses or disabilities. E-mail: info@bravekids.org

Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.