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Patient-Focused Publications
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International Pompe Day
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2014: Gallery (Uploaded Photos)
2014: Gallery (Uploaded Photos)
International Pompe Day
2022: International Pompe Voices
2021: Pompe Around The World
Hope For The Future
2018: Talent of Pompe (ToP) Awards: Results
2017: Talent of Pompe (ToP) Awards: Results
Recent Articles
Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union
Patient Registries for Pompe Disease Survey
2023: Every Move Counts
Pompe Patients Covid Survey
2022: International Pompe Voices
Events
Rare Disease Day: 29 February 2024
International Pompe Day: 15 April 2023