Welcome to the International Pompe Association (IPA)
We've been asked by Amicus Therapeutics to share information in regard to the COVID-19 outbreak and clinical trials performed by Amicus. Please read the COVID-19 Information from Amicus (PDF, 113 kB)
Disclaimer: The IPA does not endorse any of the products, medications, treatments or information reported herein. Articles on the IPA web pages are intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.
10th to 14th February 2020 in Orlando, Florida, USA
Visit report by Allan Muir, International Pompe Association and Pompe Support Network
The WORLD symposium is held every year, alternating between San Diego and Orlando every two or three years. It is an event for all Lysosomal Diseases (LDs) and is an opportunity to hear presentations of the latest research and clinical outcomes for these conditions. A huge variety of posters is presented.
The event is attended by all biotechnology companies with interests in LDs and for that reason is a fantastic opportunity to meet with their advocacy teams and other staff members.
Read the full report (PDF, 194 kB)
The Australian Pompe Association, a member of IPA, recently authored an article titled “Is Newborn Screening the Ultimate Strategy to Reduce Diagnostic Delays in Pompe Disease? The Parent and Patient Perspective” which was accepted for publication.
The article is published in the International Journal of Neonatal Screening Special edition on Pompe disease, and can be found here.