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01 - The Signs and Symptoms of Pompe Disease (394.98 kB)

updated May 2011 - reviewed by the Pompe experts at Duke University: Priya Kishnani, Jennifer Sullivan (genetic counselor), Anne Boney (dietitian), Joanne Mackey (nurse practitioner), Stephanie DeArmey (physician assistant), Laura Case (physical therapist)

02 - Getting The Right Care for Pompe Disease (139.04 kB)

updated May 2011 - reviewed by the Pompe experts at Duke University: Priya Kishnani, Jennifer Sullivan (genetic counselor), Anne Boney (dietitian), Joanne Mackey (nurse practitioner), Stephanie DeArmey (physician assistant), Laura Case (physical therapist)

03 - Adapting to Living with Pompe Disease (190.66 kB)
04 - Breathing Problems in Pompe Disease (172.06 kB)

updated April 2011 - reviewed by the Pompe experts at Duke University: Priya Kishnani, Jennifer Sullivan (genetic counselor), Anne Boney (dietitian), Joanne Mackey (nurse practitioner), Stephanie DeArmey (physician assistant), Laura Case (physical therapist)

05 - Nutrition and Dietary Therapy (132.97 kB)

updated May 2011 - reviewed by the Pompe experts at Duke University: Priya Kishnani, Jennifer Sullivan (genetic counselor), Anne Boney (dietitian), Joanne Mackey (nurse practitioner), Stephanie DeArmey (physician assistant), Laura Case (physical therapist)

07 - Common Health Concerns (180.80 kB)
09 - Having Children When You Have Pompe Disease (152.22 kB)
11 - Resources for Learning More (110.59 kB)
12 - Acknowledgements (39.18 kB)
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International Pompe Association
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