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Patients Helping Patients

Here you find a list of articles contributed by individuals of the Pompe Community. You can just browse the list below and sort it by clicking on the column headings.

All articles are tagged for easy display of articles for a specific topic. In the right-hand column you can list all tags or show all articles for a specific tag.

This is a living list of articles. So if you want to share your experiences please submit your contribution using the webform or This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

 
Title Filter     Display # 
# Article Title Date Author
1 Instruction video on how to insert a G-tube June 03, 2013 Maryze
2 Portable Bedside Handle December 18, 2012 Maryze
3 Medical ear ointment to treat nerve pain and wild tissue around G-tube August 16, 2011 Maryze
4 Medical letter regarding Pompe disease and your treatment in case of traveling July 11, 2011 Maryze
5 Home Ventilator Guide (updated 24 - 03 - 2011) April 19, 2011 Maryze
6 Always warm feet with heated socks April 19, 2011 Maryze
7 Ventilate yourself manually with an ambubag April 19, 2011 Maryze
8 Wash your hair without water April 19, 2011 Maryze
9 Turning yourself around in bed with an electric turning aid April 19, 2011 Maryze
10 Turning yourself around in bed with a sheet April 19, 2011 Maryze
 
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International Pompe Association
Contact: IPA secretariat, Paula Waddell, c/o VSN, Luitenant Generaal van Heutszlaan 6, 3743 JN Baarn, The Netherlands
Phone +31(35)5480480, Fax +31(35)5480499, E-mail info@worldpompe.org
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