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Pompe Links

Patient Websites
Please refer also to the list of Individuals affiliated with the IPA.
Display # 
# Web Link
1 Thomas SCHALLER
Personal Pompe Pages.
Some basic information on Pompe disease in English and German.
2 Thomas SCHWAGENSCHEIDT
Personal Pompe Pages.
A huge collection of Pompe related information in German.
3 VERBEEK Family
A family homepage in Dutch.
4 Gezinus WOLTERS
This is the personal homepage of Pompe patient, Gezinus Wolters. There is information on the site in both English and Dutch.
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Featured Link

Glycogen Storage Disease Network (GSDnet)

GSDNet is an unmoderated discussion list for all types of glycogen storage disease (GSD). The list is intended to be a resource and support network for individuals and families affected by one of the 11 types of GSD. Participation by medical and scientific professionals, and other relevant parties, is also encouraged.

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International Pompe Association
Contact: IPA secretariat, Paula Waddell, c/o VSN, Luitenant Generaal van Heutszlaan 6, 3743 JN Baarn, The Netherlands
Phone +31(35)5480480, Fax +31(35)5480499, E-mail info@worldpompe.org
Chamber of Commerce (Kamer van Koophandel) number: 32090949
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