International Pompe Association

IPD Logo

The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day! The goal of International Pompe Day is to foster international awareness of Pompe Disease and the slogan for our day is "Together We Are Strong". The IPA encourages everyone to become involved to show how STRONG our Community is – both in numbers and in passion! There are several ways that you can participate:

Also celebrating 10 years of treatment and International Pompe Day 2016...

Link to the video on YouTube

 


Disclaimer: The IPA does not endorse any of the products, medications, treatments or information reported herein. Articles on the IPA web pages are intended for informational purposes, only. We strongly advise that you discuss all medications, treatments, and/or products with your physician.


IPD Supporters

Acid Maltase Deficiency Association (USA)
Acid Maltase Deficiency Association (USA)

The Association for Glycogen Storage Disease UK
The Association for Glycogen Storage Disease UK

Australian Pompe's Association
Australian Pompe's Association

Lysosomal Diseases New Zealand
Lysosomal Diseases New Zealand

New Zealand Pompe Network
New Zealand Pompe Network

Canadian Association of Pompe - Association Canadienne de Pompe
Canadian Association of Pompe
Association Canadienne de Pompe

Selbsthilfegruppe Glykogenose Deutschland (Germany)
Selbsthilfegruppe Glykogenose Deutschland (Germany)

Vereniging Spierziekten Nederland (The Netherlands)
Vereniging Spierziekten Nederland (The Netherlands)

National Organization for Rare Disorders (NORD)
National Organization for Rare Disorders (NORD)

Hrvatski savez za rijetke bolesti (Croatia)
Hrvatski savez za rijetke bolesti (Croatia)

Association Shifa des Maladies NeuroMusculaires (Algeria)
Association Shifa des Maladies NeuroMusculaires (Algeria)

Rare Diseases South Africa
Rare Diseases South Africa

Genzyme Corporation, a Sanofi company (USA)
Genzyme Corporation, a Sanofi company (USA)