|
1 |
World
|
International Pompe Association (IPA) |
|
2 |
Australia
|
Australian Pompe’s Association (APA) |
|
3 |
Austria
|
Österreichische Gesellschaft für Muskelkranke |
|
4 |
Argentina
|
Asociación de Pacientes de Enfermedades Lisosomales de la Republica Argentina (APELRA) |
|
5 |
Brazil
|
AGPPDFF - Associação Gaúcha de Pacientes Portadores da Doença de Fabry e Familiares |
|
6 |
Canada
|
Canadian Association of Pompe |
|
7 |
China
|
MDA China (Neuromuscular Disease Association of China) |
|
8 |
France
|
L’Association Francophone des Glycogénoses (A.F.G.) |
|
9 |
Germany
|
Selbsthilfegruppe Glykogenose Deutschland e.V. |
|
10 |
Greece
|
Krikos Zois |
|
11 |
Hong Kong
|
Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group |
|
12 |
India
|
Mr Prasanna Kumar B Shirol (President and Karnataka state coordinator) |
|
13 |
Israel
|
Enzyme - The Association for Pompe Patients |
|
14 |
Italy
|
Associazione Italiana Glicogenosi (AIG) |
|
15 |
Japan
|
Japanese Pompe Association |
|
16 |
Malaysia
|
Malaysia Lysosomal Storage Disease Association (MLSDA) - Pertubuhan Penyakit Lisosomal Malaysia |
|
17 |
Mexico
|
Sociedad Mexicana de Distrofia Muscular (SMDM) |
|
18 |
Netherlands
|
Vereniging Spierziekten Nederland (VSN) |
|
19 |
New Zealand
|
Lysosomal Storage Disorders New Zealand (LDNZ) |
|
20 |
New Zealand
|
Muscular Dystrophy Association of New Zealand |
|
21 |
New Zealand
|
New Zealand Pompe Network |
|
22 |
Norway
|
Foreningen for Muskelsyke |
|
23 |
Peru
|
Asociacion de Distrofia Muscular del Peru |
|
24 |
Philippines
|
Philippine Society for Orphan Disorders (PSOD) |
|
25 |
Poland
|
Polish Neuromuscular Disorder Association |
|
26 |
Poland
|
Stowarzyszenie Chorych na MukopolisacharydozÄ™ (MPS) i Choroby Rzadkie |
|
27 |
Singapore
|
Muscular Dystrophy Association Singapore (MDAS) |
|
28 |
South Africa
|
Muscular Dystrophy Foundation of South Africa |
|
29 |
Spain
|
Asociación Española de Enfermos de Glucogenosis (A.E.E.G.) |
|
30 |
Switzerland
|
lysosuisse |
|
31 |
Taiwan
|
Taiwan Foundation For Rare Disorders |
|
32 |
Turkey
|
Türkiye Kas Hastalıkları Derneği |
|
33 |
Ukraine
|
Ukrainian MD Association ERB / Information Fund ERB |
|
34 |
United Kingdom
|
Association for Glycogen Storage Disease (UK) |
|
35 |
USA
|
Acid Maltase Deficiency Association (AMDA) |
Affiliates
