International Pompe Association

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Welcome to the International Pompe Association (IPA)

Pompe News

Note to our visitors

The IPA website experienced a severe attack so we had to go offline for a while. Most of the content could be retrieved from backups. We took the opportunity to improve the system but still some work has to be done. We are asking for your patience until the website will be fully restored and functional.

Quick Links

  • About IPA
    The International Pompe Association (IPA) is a federation of Pompe disease patient's groups.
  • IPA Members and Contacts
    Find a contact person or organisation in your country.
  • PompeConnections
    Our brochures are available in many languages and designed to help Pompe patients.
  • Clinical Trials
    Useful links to informations about past and on-going clinical trials.
  • Pompe Survey
    Questionnaire project “Investigation into the clinical condition of late onset Pompe patients”.